Family's hope for little Skye who suffers eight seizures a day
Skye Dunn, four, from Glasgow suffers from tuberous sclerosis, which can be fatal.
Skye Dunn is just four years old. She cannot speak and suffers as many as eight seizures every day.
She suffers from a rare and potentially life-threatening condition known as tuberous sclerosis, as well as suspected epilepsy, autism and learning difficulties.
But despite these challenges, Skye is a "happy wee girl", and loves attending nursery.
Her mother Lynne, from Glasgow, has revealed how her daughter suffers every day in a bid to raise more awareness of the terrible condition.
Tuberous sclerosis - which affects just one in 6000 children - causes benign tumours to develop in different parts of the body, which can cause epilepsy, autism and learning difficulties.
Lynne believes a lack of information on the potentially life-threatening disease is preventing researchers from finding a cure.
"Skye has had a really hard time of it," she says. "She has 15 different medications since she was first diagnosed and absolutely none of them have worked."
For Skye and her family, every day is a constant struggle against her tragic illness.
"The average day for Skye is very hectic. She takes seizures every day - always at least one, that can be a good day. "
"But she can have up to eight seizures a day, three or four of which can be after she goes to bed.
"Each seizure just knocks her out and she will be very groggy for a good while afterwards. It's on and off like this every single day."
Understandably, the brave youngster's resistance can wear her down.
"She has very bad mood swings and her tantrums are just off the scale. She often bites herself as well and so we need to constantly keep an eye on her.
"We think this is a result of autism, although we are still waiting for the results of her autism assessment."
Lynne says the disease has many possible forms, but she tries to avoid reading about Tuberous sclerosis in its worst.
"When she was first diagnosed with the disease, we were told that there are different ranges of the condition.
"Skye currently has growths on her brain and they will be there for life, but I've read that other kids that suffer from it can also develop growths on their hearts which keep growing until the point that it kills them.
"I try not to read too much about other people's experiences though as I'm not ready to think about the possibility of Skye dying as a result of this.
"We just want to deal with this in our own time." Skye spends much of her time in hospital and only sleeps for a few hours each night as a result of her seizures.
As well as caring for Skye full-time, Lynne also looks after ten-month-old son Carson.
Her husband Kevyn, 31, a supermarket worker, is cutting his working hours in order to spend more time caring for Skye. Very little is known about the rare disease and that they have struggled to find proper medical help as a result.
"When Skye had her first seizure after being diagnosed, the paramedics that came to help had not even heard of the condition,"
Lynne says. "They could only help in terms of dealing with the seizure. We have even met doctors who admitted to us that they had never heard of it before meeting Skye.
"That's why it is so important to us that more awareness is raised about this condition."
So that is what they are doing. Lynne and her family have been trying to raise money for the Tuberous Sclerosis Association charity, and have so far raised £1000.
Her aim is to raise awareness of the disease in the hope that a cure can be found, not just for Skye, but for every sufferer.
She said: "The Tuberous Sclerosis Association receives no funding. Every penny they make comes from donations, so we decided to start fundraising.
"We set a target of £1,000 and have reached it within a couple of days.
"Myself and Skye's two aunts Angela Logan and Karen Robinson have worked endlessly collecting donations and contacting companies.
"We want to raise as much as possible and make this condition more well known." she says.
"Skye is my hero, the bravest person I know and we hope and pray one day a cure will be found."